Enriching & Improving Experience Event   #PEOLCSScot18

1st February 2018

Tim Warren from the Palliative and End of Life Care Integration Division, Scottish Government opened the day, explaining the aims of palliative care and the fact that by 2021 everyone is to have access to palliative care & actually get it, thus enabling people to ‘live and die well on their own terms’.

Joe Hockley from the University of Edinburgh introduced us to the NHS Education Scotland / SSSC framework as a means of building capacity for Palliative Care through learning and development. More people are dying in hospital or care homes than at home, so we need to be able to talk about dying, help people die and role model what works. A reflective debriefing tool has been published to develop understanding, and Jo has a vision for a teaching / research based care home in a community setting, working with satellite care homes to test ideas ready to share with the other 103 care homes in Lothian.


Suzanne Nimmo from Macmillan then discussed their own framework, complete with training packs and workbooks accessible to all. They also offer a free 4 day training course open to those working in palliative care.

Gina Alexander from Care Opinion highlighted how important stories are in improving palliative and end of life care. Her organisation collates real life stories from service users and draws out data on what works and what needs improved. Every health board has access to Care Opinion data – this data covers all Health & Social Care topics. Are our members using this information channel? It fits with what works, service improvement and is also a mechanism for qualitative reporting. Let us know in the comments if your HSCP has any success stories using this rich data source as this help other HSCPs benefit in a similar way.

Jacqueline Graves, Human Rights Lead for Sue Ryder then talked about a guide to End of Life Care and Human Rights produced by the British Institute of Human Rights & Sue Ryder. They have a training programme available to download and can also deliver F2F training to your organisation.

In the afternoon, Kenny Steele, Chief Executive for Highland Hospice passionately shared the benefits the hospice had gained from implementing Project Echo, a communication system linking geographically diverse stakeholders to share knowledge across the whole system.

This event really highlighted what an important subject palliative and end of life care is, and also that we may not be giving this area enough attention. How much does this feature in the plans of our HSCPs? This event shared some of the frameworks and training available on this topic, but how do we ensure that this is delivered to the right people in the right manner? How do we best support care staff who are not academically orientated, on low wages and work in areas of high turnover? Can we break down barriers of private v health board care to give these people a collective group to draw upon and learn within? I’d love to hear your comments below.